That was then, this is now.

I remember a lot about my childhood. Surprisingly, my memories are pretty clear. I especially remember summers. When I was young, I never went to camp and we rarely traveled during summer vacation, so I enjoyed my break from school in the idyllic setting of a small town. I grew up in northern New England and recall riding my bike to my best friend’s house by the lake almost daily and floating with her in the cool water for hours, doing cannonballs off her dock. I never wore sunscreen, I drank Coke out of glass bottles, sang along to the radio, made s’mores and pretended to be Princess Leia. I remember picking red clover from the field near my house, plucking the purple spikes from the stem and chewing on their ends. I fished for tiny perch with my brothers, and caught fireflies in a mason jar with holes poked in the lid, hoping they’d live through the night. I remember the chirping of crickets as I lazily rocked in a hammock.

I don’t remember being bipolar.

But my 10-year old daughter will spend her summer suffering from the disease I unwittingly passed down to her. She will know too well the symptoms I didn’t experience until my twenties. Her summer will be full of therapy, and medications and their side effects. She will continue to lose friendships and not understand why. She will cry herself to sleep, asking why she has to be “like this”. And I will have no answers for her. I can give her cool lakes and hammocks and Coca-Cola, but the joy she might get from those experiences will be only temporary.

I wish I could have my youthful summers back. Because I would give them to her. Instead, I gave her bipolar disorder.

Passing time

I just saw a cool quote (author unknown):

“Never give up on a dream just because of the time it will take to accomplish it. The time will pass anyway”.

So true. This applies to many things – love, health, fame and fortune among them. But my dream is happiness. The time it will take to find my dream may be out of my hands, but what I do with myself in the meantime is entirely up to me. And I don’t intend to waste a single moment.

Look out happiness, here I come.

Nothing “purty” about it

My paternal grandmother, apparently, was bipolar. I didn’t learn this until just a few years ago. You see, I always thought she was just plain old mean.

There had been plenty of minor incidents when I was growing up during which I experienced my grandmother’s curious behavior. Oddly, she was always either high or she was very low. But there was no in-between that i can recall. We always thought she was just bitchy. And when she wasn’t being incredibly unpleasant, she was in her bed, seemingly feeling sorry for herself. She lived 1000 miles from our home so we didn’t see her often, but when we were together it was always the same routine. She was a miserable witch.

It had always been clear that I was no favorite of my grandmother’s. She had told me on many occasions that I was too much like my mother, who she referred to as a “Goddamned heathen immigrant”. My grandmother was a Methodist with a thick Southern accent (not the charming kind of drawl, either, but the hick dialect of an uneducated farm girl from the South). My mom was an obedient woman, a Russian Orthodox who was not the first choice of a wife for her perfect and only son. And my grandmother hated her; by relation, she also despised me.

I remember a couple of incidents quite clearly, which I now recognize to have been manic episodes. The first was at my high school graduation party. My friends and guests were milling about, congratulating me and paying me attention. But my grandmother was being largely ignored, and her narcissism and her disorder couldn’t handle the slight. So she worked her way into the center of the small crowd with whom I was conversing, and I was starting to introduce her when she announced quite loudly, “Ya know, if you were half as nice as you are purty, you mighta turned out okay….”. The crowd was still and silent, and I did my best to choke back my tears and hide my shame. My father quickly escorted his mother from the patio and brought her inside. She spent the next day in bed, never once rising until the following afternoon. I was devastated that she had embarrassed me in front of my friends, and I received no apology. It was as if, in her mind, the incident had never occurred.

The second episode was at the dinner table on Christmas night when both my grandmothers were present: my father’s mother, and my little Russian babushka who everyone adored. They had both traveled to join us for the holiday to celebrate my older brother’s engagement that day to his longtime girlfriend. Looking back on that night, I remember my grandmother’s agitation and restlessness. She had been sarcastic and antsy all day. By the time we sat for dinner, she could no longer hold in her angst. She began by telling me I shouldn’t eat so much or I’d end up “fat like your mother”. She pretended she couldn’t understand my Babushka, asking if she was ever going to learn to speak “real English”. She then asked my brother’s stunned fiancée if she was sure she wanted to be part of this family. My father asked her several times to apologize, to quiet down, but when my grandmother told my mom that her beautiful Christmas meal “tastes like shit”, my father threw his chair back from the table and lifted his 75-year old mother from her seat and carried her, kicking and screaming, from the table and into her room. My mother cried, my brother apologized on his grandmothers behalf, and my father returned to the table and pretended nothing had happened. The next morning when I woke, my father and grandmother were gone. He had taken her to the airport to return home. She never again was invited to visit, although she did attend my brother’s funeral four years later, at which time she spent the night in a hotel and was not allowed to stay in our home.

My mom told me only recently that my grandmother was bipolar, and that when I was a toddler my grandfather had her “institutionalized”. During her 6-week stay at a mental hospital, she underwent ECT. This was the early 1970’s and my grandfather believed it was her only chance. Sadly, ECT was not an effective treatment for her and she took lithium for the rest of her life, another 25 years. During that time, my mother tells me, my grandmother was unfaithful to my grandfather as a means of punishing him for “forcing” her to do ECT, for shaming and humiliating her. So, she shamed and humiliated him back by publicly carrying on a two-year affair with another man. Her indiscretion was, in her mind, payback for the terrible way he had treated her, forcing her to receive treatment for a disease that in her mind didn’t exist. And my poor grandpa was well aware of her behavior, of her cheating. He was a man who missed his wife and the woman she used to be, and was willing to do anything to make her well because he believed somewhere behind her illness was that woman he still loved. He forgave her the affair because he loved her, and instead blamed her illness for it.

He died before she could truly be well. So did she.

My grandmother’s life was anything but “purty”. She refused to acknowledge her illness, and it consumed most of her years. It stole from her relationships with her son and grandchildren. It left the people in her life with nothing but ugly memories of her. She missed out on blue skies and friendships and the warm embraces of children because she was sick and refused to ask for help. She denied the disease existed, and as a result she denied herself the possibility of a happy life.

Bipolar disorder may run in the family, but the way it’s handled doesn’t. I refuse to turn out like her.

I absolutely refuse.

“Chaos to Cured”

I’ve just finished reading an interesting book written by an acquaintance of mine, Kirk Miller, describing his life with Bipolar 1, his body’s resistance to most conventional bipolar meds, and how he stumbled upon a medication that he believes to have cured his mental illness.

I urge you to read his memoir, because some of his highs and lows are so familiar to me, as well as so many of the side effects he truly suffered from while taking the “typical” meds. I do not believe he tried ECT so for those of you adverse to the thought of electric shock as therapy for bipolar, perhaps this book is worth a look.

It’s a fast read, and inexpensive. You can download it onto a Kindle for less than $4. And best of all? All of his net profits from sales of these books will be donated to the “Healing Unique Minds Foundation”, which provides research and aid to bipolar patients. You can even check him out at http//:www.luneraresearch.com

If nothing else has worked for you, read Kirk’s book and talk to your doc. See where things take you from there.

Thanks.

#chaostocured

Slam

What is it about slamming doors in the middle of a manic episode that feels so good? Everything about it – the sound and the resulting shake, the reverberation of wood against wood, the physical exertion required to break it from its frame. It’s incredibly satisfying. I don’t hit people, I don’t punch walls or break dishes. I slam doors.

I think I’ve mentioned in past posts that my mania doesn’t manifest itself in the more common ecstatic episodes or euphoric highs, but as violent outbursts over which I have little or no control. And during those violent outbursts, few things feel better to me than the good hard slam of a door.

I’ve broken three door frames that I can remember. Four, if you count the door that was already broken when I slammed it again, knocking the frame even further apart from the wall. I’ve probably slammed doors a hundred times, but have only broken four that I can recall. I do not say that with pride.

The first doorframe I broke was our bedroom door in the first home I shared with my husband 18 years ago. I slammed it in the face of my brother-in-law following an argument during which I was the only one arguing. I think it was the first time my husband and best friend, who lived with us, had ever experienced the peak of one of my manic episodes. And they were blown away by the “Jekyll and Hyde” change in my personality in such a short period of time.

The next door was five years ago, connecting our kitchen to the garage. I was, again, “peaking” and was furious with my poor husband for some minor incident which, in my mind, was inflated to catastrophic proportions. I was making a dramatic exit from our argument, planning to tear out of the garage in my car, tires squealing. And that dramatic exit involved slamming that sturdy door so hard that the entire room shook from the force. It took us four years to get around to fixing that frame, and since I could see it each morning from where I sat at the kitchen table eating breakfast with my children, it served as a daily reminder of the place I didn’t want ever to be again.

It is with shame that I admit that the third (and fourth) door I slammed hard enough to ruin was that of my youngest daughter’s bedroom. My sweet love, who also suffers with manic episodes. Even more shamefully do I admit that she was in the middle of her own manic hell and in her bedroom both times I slammed her door. I couldn’t take her screaming and crying another moment, her hysteria and violence. And most shameful of all? I felt better after doing it. It’s as if I could displace so much aggression with the simple act of “closing a door a little too hard”. And that poor little girl stopped her hysterics in the middle of her meltdown both times, most likely scared to death to see the grown up image of herself screaming back at her and breaking door frames. She was probably recognizing with fear that this is what she might become.

I had that door repaired soon after the incident. I didn’t tell her dad, from whom I am separated, who had been present the second time it happened. I couldn’t look at it when I tucked my little girl into bed every night. The shame of having broken that door in her presence was too much to be reminded of. Too much for her to be reminded of. Maybe my husband will notice on his own that it didn’t take me four years this time to get help. To make repairs. Maybe he will someday notice that it’s back to normal and that I did it without being asked, without being begged to try to fix what was broken. Maybe he will notice that it’s better. That I’m better.

Then again, maybe not.

A side note: to my sweet little girl, should this post be available to you when you are old enough to read it, I’m sorry for scaring you. I am so desperately sorry.

Well, Tigger, that explains it!

My 12-year old son told me recently that he believes that mental illness is everywhere. He cited the characters from Winnie the Pooh, claiming each main character suffers from at least one personality disorder. He gave me the lowdown:

Winnie the Pooh: eating disorder
Piglet: anxiety
Tigger: ADHD
Eeyore: depression
Rabbit: OCD

And what about Christopher Robin? Well, apparently he suffers from delusions. After all, he believes his stuffed animals are carrying on conversations with themselves and with him.

My boy is not taking credit for this evaluation, as he thinks he heard it somewhere. But it’s a very clever synopsis. And it’s nice to know that, even in the world of fictional children’s literature, we are not alone.

DBT, anyone?

I’m being “required” by both my ECT doc and my psychiatrist to try something called “DBT” (Dialectical Behavior Therapy). They even wrote it out on a prescription pad and handed the “Rx” to me with a warning that if I didn’t try the 10-week program, they would no longer be willing to treat me. I don’t think that’s actually true – I think they were trying to force my hand because they believe this will really work for me.

It had its desired effect.

My teenage daughter saw the “prescription” and because it was written in typical illegible doctor handwriting (no offense, Ted Danson….), she thought it said, “DiaBOLICAL Behavior Therapy”. I suppose that wouldn’t be much of a reach, considering a lot of my past behavior.

So, I’m now 3 weeks into the program. And I’m curious: have any of you done this? Your thoughts? Has it worked? I’d love some opinions and maybe some personal insight into DBT.

And if it was diabolical, well, I guess I’d be interested in hearing that, too.

Thanks in advance.

Sorry, Bing

Bing Crosby sang this song that I loved when I was growing up.  These are the first few lines:

“When I’m worried and I can’t sleep
I count my blessings instead of sheep
And I fall asleep counting my blessings”

Sorry, Bing.  I have absolutely no interest in counting blessings or sheep.  I’m completely exhausted and sleep deprived and I am not going to fall asleep counting either.  And when I’m low on sleep, I also feel rather low on blessings.

So instead, I think I will count Ativan.

“Unquiet”

I was recently prompted to re-read a wonderful memoir after being reminded of it by a fellow blogger (thank you, http://writingforfoodinindy.wordpress.com).  I had actually read this book a few years ago, but my memory of it was lost among so many other pieces of my short-term past as a result of ECT.  You might see me referring to it frequently in the future, because it’s an honestly written account of Kay Redfield Jamison’s life with bipolar disorder:  “An Unquiet Mind:  A Memoir or Moods and Madness”.  There are few better ways to describe how my mind often feels than “unquiet”.

When I looked up a definition of “unquiet”, this is what I found:

Adjective:  1. Not inclined to be quiet or inactive; restless.   2.  Uneasy; anxious

Synonyms:  restless – anxious – uneasy – troubled – restive

Huh.  When I think of words people used to describe me when I was a young adult, I recall “anxious” and “troubled”.  I remember hearing “restless”.  (I’ve not actually ever heard of the word “restive”, but I’m sure it would have applied…..).  And “not inclined to be quiet”?  Ha!  Most definitely, then and now.

If you’ve not read this book, I’d like to encourage you to do so.  Sometimes memoirs are such downers, but Ms. Jamison allowed me to occasionally giggle at being able to relate to her honest accounts of life with this crippling mood disorder.  And while being manic-depressive is certainly no laughing matter, it’s important for me to laugh at myself once in a while.  I’m glad to be reminded that I’m not the only one out there who feels this way.  Unquiet.

Again, thank you to “IndyTony” at WordPress for bringing Ms. Jamison back into my life.